Chronic Illness Research, Have Your Voice Heard

Updated: Mar 8, 2021




Hi Everyone,


If case you are new to my blog, I am Heather a Support Group Leader for the Sjogren's Society of Canada and a Sjogren's and Lupus patient.


I am always trying my best to bring information and support to those who are new to their diagnosis or struggling with their disease.


This post is a bit different, but still very important.


Below you will find information given to me about a research project related to employment experiences of individuals living with chronic health conditions.


This research is being hosted by several doctors for multiple organizations and universities.


I do think it's important to give back to research opportunities, and this is an opportunity to have your voice heard. If you are interested in participating, please see the information below.


From the research staff:


"We are conducting a research project to understand the employment experiences of individuals with chronic health conditions (e.g., Sjogren's, Lupus, mixed connective tissue disease).


We will specifically focus on questions that ask about how you communicated (or choose not to communicate) about your chronic health condition to your supervisor, HR, co-workers, etc.


We will also be asking about your thoughts and emotions related to your condition and how this has impacted your identity and decisions at work.


This study will result in a published academic paper that helps us to understand the employment experiences of employees with chronic health conditions.


We are asking for your participation if you are 18 years of age or older, speak English, are employed full-time at an organization (i.e., not self-employed), and identify as someone with a chronic health condition.


If you meet these criteria and are interested in participating, please consider taking our screening survey here.


Participation involves an interview with one of the researchers where you will provide insight into your experience by answering questions related to your chronic condition and how it affects you and your work.


We estimate that the interview will take about 45 minutes to complete, but you can take as long as you need to finish it.


The interviews will be done over the phone or over Zoom (your choice if you want the camera on or not).


Your participation in this study is completely voluntary. Further, there are no specific benefits or risks of participating in the study.


Overall, we hope the findings from this study will help researchers and organizations better understand the full experiences of employees with chronic health conditions and help raise the visibility and importance of supporting chronic health condition sufferers at work.


After you complete the screening survey, a member of the research team will email you to schedule a date and time to complete the interview.


Thank you, in advance, for considering participation in this research!


Emily, Sabrina, and Brent


Emily M. David, Ph.D.

China Europe International Business School (CEIBS)


Sabrina D. Volpone, Ph.D.

University of Colorado Boulder


Brent J. Lyons, Ph.D.

York University



I volunteered to help this research study, and if you have the ability to volunteer, I encourage you to reach out and help too.


Wishing you Health and Happiness,


Heather



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